Author: Mike Costanzo

A Hard But Good Day

Everyone, Thanks so much for your prayers! Today we met with Naomi’s medical team to discuss big-picture questions related to her care. To be honest, it was really hard to once again come face-to-face with the reality of her diagnosis, since the likelihood of her survival is so low. But both of us feel strongly that she has a chance, and until that chance dwindles to zero we want to do everything we can for her. We are so grateful that her medical team is on board with this decision, and that they are working so hard to keep her alive. But what made today a good day in the NICU was the fact that Naomi opened here eyes really big, and then actually smiled at us! And then she did it again. And again…six times! It’s hard to express in words the way the smile of a newborn can warm your heart, especially in the face of such a stark situation. Yet another grace from our heavenly Father! Despite the necessity of today’s meeting, we are working hard at simply taking life with Naomi one day at a time. It is so hard for “planners” like us to deny the desire to think about the future and try to figure out what we can expect next. And yet it is essential for our sanity, and central to the...

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Good News on Naomi’s One Week Birthday

Good news today: Naomi has been fairly stable this weekend, so today she finally had a feeding tube surgically inserted into her tummy (since she can’t swallow anything). Sometimes even a simple surgery like this can be a problem with premature babies, but by God’s grace everything went well. Assuming all goes well, in a few days they are hoping to check and see if her lower gastrointestinal system is working as it should, and if so, to start feeding her breast milk as soon as it is safe. Please pray that she would remain stable, that her intestines (and everything else) would work as they should, and that she would be able to be fed breast milk as soon as possible! Also, we found out today that Naomi’s heart is unusually healthy for someone with her diagnosis. That information is in no way a guarantee of a positive outcome, but rather an evidence of God’s sovereign power in her life. Please continue to pray that she would live, and that God would get the glory! Finally, we wanted to say thank you again to everyone for all their support. We wish we could thank you all individually, but then we would have no time for sleep. smile emoticon Just know that we read each and every one of your comments, emails, and messages, and we appreciate you standing...

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A Sad Diagnosis for Our Precious Naomi Grace

Our beloved friends and family, After meeting with the doctor today, we have some sad news to share: our precious Naomi has a serious genetic condition called Trisomy 18. Most infants with this condition never make it to live birth, and of those that do, 90% do not make it to their first birthday. Some live for a few years, while others live only a few days. And from what we can tell, there is no way to predict how long Naomi will live. This is sad, devastatingly sad. All of our expectations and hopes for Naomi are now...

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Naomi’s Surgery Postponed

Thanks for waiting, everyone! Here is the latest on Naomi and Jen: Jen came home from the hospital today! She is obviously tired, and sad to have to be apart from Naomi, but is nevertheless trusting in God’s good care of our dear little daughter. Meanwhile, Naomi’s feeding tube surgery has been postponed until Monday due to to some minor respiratory problems (ductus not closed and thus a bit too much blood entering the lungs and taking up space). The decision to postpone is a good one, since the feeding tube is not an essential surgery, and waiting until...

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Pictures of Naomi

Dear little Naomi Grace is in her 3rd day of life. She is stable, but tiny & fragile, and there are still many unknowns. She will be having surgery Friday to place a tube in her stomach. This will help her to receive nourishment and enable the doctors to do further studies of her digestive system. Please pray for safety and success in the surgery–even a small procedure like this is a little scary, since her physical condition is so delicate. Thank you! Love, Mike & Jen...

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Jen’s Goodreads Reviews