Some Very Encouraging Updates

It’s hard to believe that it’s been 5 days since our last update. Thank you to all of you who have remained faithful in prayer even when updates have been few! Naomi has been doing extraordinarily well on a number of important fronts. Her feedings have...

A Gut-Wrenchingly Hard Day

Today was a gut-wrenchingly hard day. We met with Naomi’s medical team today, and were confronted anew with the severity of her disease. Up until today, we had thought that best-case scenario would be to keep her in the hospital long enough to get all of her...
Some Bad News, But Some Really Good News

Some Bad News, But Some Really Good News

Time for another Naomi Grace update! There is some bad news, but some really good news as well: The bad news (which really isn’t news to us) is that further DNA testing has revealed that Naomi does indeed have “full” Trisomy 18. There are 2 other...

A Hard But Good Day

Everyone, Thanks so much for your prayers! Today we met with Naomi’s medical team to discuss big-picture questions related to her care. To be honest, it was really hard to once again come face-to-face with the reality of her diagnosis, since the likelihood of...
A Sad Diagnosis for Our Precious Naomi Grace

A Sad Diagnosis for Our Precious Naomi Grace

Our beloved friends and family, After meeting with the doctor today, we have some sad news to share: our precious Naomi has a serious genetic condition called Trisomy 18. Most infants with this condition never make it to live birth, and of those that do, 90% do not...