A Hard But Good Day

Everyone, Thanks so much for your prayers! Today we met with Naomi’s medical team to discuss big-picture questions related to her care. To be honest, it was really hard to once again come face-to-face with the reality of her diagnosis, since the likelihood of...

Poop Is Good!

Great news–one of our prayer requests has been answered in a big way! Yesterday Naomi had some special fluid put into her feeding tube to test and see if her intestines are fully connected. Both Jen and I were feeling some anxiety about the results, since we...

Naomi’s Two Week Update

Everyone, Thank you so much for your continued prayers! Naomi has been doing well overall, so much so that I (Mike) was able to attend a Christian Men’s Retreat this weekend. It was hard being away, but incredibly encouraging and a much-needed recharge....
Some Bad News, But Some Really Good News

Some Bad News, But Some Really Good News

Time for another Naomi Grace update! There is some bad news, but some really good news as well: The bad news (which really isn’t news to us) is that further DNA testing has revealed that Naomi does indeed have “full” Trisomy 18. There are 2 other...

A Gut-Wrenchingly Hard Day

Today was a gut-wrenchingly hard day. We met with Naomi’s medical team today, and were confronted anew with the severity of her disease. Up until today, we had thought that best-case scenario would be to keep her in the hospital long enough to get all of her...