Thanks so much for your prayers! Today we met with Naomi’s medical team to discuss big-picture questions related to her care. To be honest, it was really hard to once again come face-to-face with the reality of her diagnosis, since the likelihood of her survival is so low. But both of us feel strongly that she has a chance, and until that chance dwindles to zero we want to do everything we can for her. We are so grateful that her medical team is on board with this decision, and that they are working so hard to keep her alive.
But what made today a good day in the NICU was the fact that Naomi opened here eyes really big, and then actually smiled at us! And then she did it again. And again…six times! It’s hard to express in words the way the smile of a newborn can warm your heart, especially in the face of such a stark situation. Yet another grace from our heavenly Father!
Despite the necessity of today’s meeting, we are working hard at simply taking life with Naomi one day at a time. It is so hard for “planners” like us to deny the desire to think about the future and try to figure out what we can expect next. And yet it is essential for our sanity, and central to the path that God is calling us to.
Thanks for praying for Naomi, and for us as well. May God continue to be glorified through her fragile little life!