Today was a gut-wrenchingly hard day. We met with Naomi’s medical team today, and were confronted anew with the severity of her disease. Up until today, we had thought that best-case scenario would be to keep her in the hospital long enough to get all of her internal organ problems repaired, but after today that does not seem like a very realistic scenario. From what we were told today, she may never have some of the key surgeries that we have been anticipating because they may not be possible or effective. She may never feed orally or breathe well, and even with specialized care she may not last long after coming home. That is, assuming that she comes home at all.
We won’t go into all the details because it would take us hours to type them up, and would likely leave you feeling as overwhelmed as we do. Long story short, we are casting ourselves on God’s mercy and pleading for His wisdom because ours is totally insufficient. We don’t have to make any decisions now (other than to continue to keep her alive), but when the time comes we will need Jesus’ almighty power to get us through it. This is the hardest thing we’ve ever had to go through, and from what we can tell it’s only going to get harder.
Please pray for us. We feel broken in spirit, and need to be lifted up. And pray that God would be glorified in every single day of Naomi’s precious life.