A Hard But Good Day

Everyone, Thanks so much for your prayers! Today we met with Naomi’s medical team to discuss big-picture questions related to her care. To be honest, it was really hard to once again come face-to-face with the reality of her diagnosis, since the likelihood of...

Naomi’s Two Week Update

Everyone, Thank you so much for your continued prayers! Naomi has been doing well overall, so much so that I (Mike) was able to attend a Christian Men’s Retreat this weekend. It was hard being away, but incredibly encouraging and a much-needed recharge....
Some Bad News, But Some Really Good News

Some Bad News, But Some Really Good News

Time for another Naomi Grace update! There is some bad news, but some really good news as well: The bad news (which really isn’t news to us) is that further DNA testing has revealed that Naomi does indeed have “full” Trisomy 18. There are 2 other...

Some Very Encouraging Updates

It’s hard to believe that it’s been 5 days since our last update. Thank you to all of you who have remained faithful in prayer even when updates have been few! Naomi has been doing extraordinarily well on a number of important fronts. Her feedings have...

Naomi At 5 Weeks—Barely Holding On

Our dear family and friends, Today is Naomi’s 5 week birthday. Sadly, this past week she has had some major setbacks, and the past 24 hours have been especially bad. Due to a leaky feeding tube and other problems she has lost a lot of weight over the last number...